We warmly welcome you to the Syngap community and so pleased that you have a diagnosis!
Whether you have a young child and this journey is new and unexpected or you have an older child and have been searching for answers for a long time, getting a diagnosis is a life changing moment. Feeling grief, overwhelmed and confused is normal and we have definitely all been there. Great news is that you are no longer alone and the Syngap community is a wonderful source of knowledge, connection and support. So where to from here?

To keep it simple:

Email us at syngapaustralia@gmail.com and be connected in with the Australian Syngap Community.

Like Syngap Research on Facebook to keep up to date with the latest developments in Australia and around the world.

Connect with other families! One of the best things about getting a Syngap diagnosis is being able to connect with other families in Australia and around the world. Sygnap Global Family Support is a closed family group and everyone is welcome to ask questions and share your own lived experiences – while the Syngap diagnosis may be new to you, you are still the person who knows and understands your child better than anyone.

Read and watch up about Syngap! There are lots of articles and research papers that can be found under the Research tab. For now, watch Professor Ingrid Scheffer and Professor Steven Petrou’s talk at the 2020 GETA conference and be inspired by the hope of a cure for Syngap. If any of the new terms confuse you when reading and watching and learning about Syngap, please refer to our glossary to help you understand what this new language means.

Enjoy Wednesday Warriors on Instagram. Each Wednesday a new syngapian is featured along with a
little bio. A lovely way to see and hear from syngapians all around the world. Please contact us if you would like your syngapian to be featured - the more the merrier!